Perception versus reality: implications of living with occupational overuse syndrome, an acquired hidden disability

Abstract

This thesis addresses issues confronted by people living with an acquired hidden disability, specifically people living with Occupational Overuse Syndrome (OOS). Building on the idea of perception versus reality, the purpose has been to identify the challenges and inconsistencies faced by people living with OOS and the implications of these for service provision. A social model of disability is used, emphasising the impact of environmental factors on the level of disability experienced by individuals. The research has been undertaken from a feminist perspective drawing on aspects of postmodern and standpoint theory. The research method is qualitative, using semi-structured individual and focus group interviews with eleven participants. People living with OOS are in a paradoxical situation. An outward appearance of looking healthy masks a different reality. Their lives can be significantly constrained through chronic pain, fatigue, restricted activity, loss of identity and loss of financial security. Research findings showed that people living with OOS are faced with constructing a new identity as they move through a process of adapting to an altered state and coping with societal attitudes towards difference. These attitudes are primarily negative and demeaning. The process of adaptation required motivation and an ability to seek creative options for undertaking daily tasks and other activities. The frustration of a hidden disability provided constant challenges, particularly at times of greater vulnerability such as assessment for service provision and matters relating to employment. Experiences of inappropriate rehabilitation programmes and pressure exerted to follow specific treatment regimes highlight the dangers of a "one solution for all" approach. This research has significance for social workers and other service providers by highlighting the multi-faceted impact of living with OOS, acknowledging the vulnerability of people living with the condition and their ability to "do things differently".